The social support network in the care of rare disease and family protagonism

Objective: To understand the construction of the social support network for the care of a young person with a rare disease. Methodology: A study with a qualitative approach, such as a case study, carried out with the family of a young man with Epidermolysis Bullosa who lived in the metropolitan regi...

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Detalhes bibliográficos
Autor principal: Silva, Ronaldo Antonio da (author)
Outros Autores: Bernardino , Fabiane Blanco Silva (author), Rocha , Roseany Patrícia Silva (author), Santos , Renata Emily da Silva dos (author), Alencastro , Lidiane Cristina da Silva (author)
Formato: article
Idioma:por
Publicado em: 2020
Assuntos:
Social support
Family
Rare diseases
Epidermolysis bullosa
Family nursing.
Apoyo social
Familia
Enfermedades raras
Epidermólisis ampollosa
Enfermería de la familia.
Apoio social
Família
Doenças raras
Epidermólise bolhosa
Enfermagem familiar.
Texto completo:https://doi.org/10.33448/rsd-v9i10.8385
País:Brasil
Oai:oai:ojs.pkp.sfu.ca:article/8385

Texto Completo

https://doi.org/10.33448/rsd-v9i10.8385

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